Sharing Linked Data for Health Research Toward Better Decision Making
Produktdetaljer
Sharing Linked Data for Health Research Toward Better Decision Making
'This is a much-needed contribution to the international discussion of how to responsibly use linked data in health research. By covering theory and practice, ethics and law, Adams, Allen, and Flack offer more than just a well-researched academic volume: it is a playbook for researchers and regulators to optimize health data linkage to advance the public good.' Eric M. Meslin, Ph.D., FRSC, FCAHS President and CEO, Council of Canadian Academies
'I strongly recommend this excellent, comprehensive book. It's based on sound theoretical foundations and practical solutions with international relevance. It's a highly important, unique contribution to the literature and is relevant to professionals and students alike across the globe.' Kerina Jones, Professor of Population Data Science, Swansea University, Wales, UK
'This excellent monograph explains how linked personal data can be safely used to answer important health questions. Future decisions about data sharing, requiring legal authorisation as well as independent ethical review, should be timely, transparent and based on clear and consistent criteria.' John D. Mathews, Professorial Fellow, University of Melbourne
'Sharing Linked Data for Health Research is an outstanding academic achievement and worthy of purchase and study by all involved in data-intensive research.' Edward S. Dove, School of Law, University of Edinburgh, UK
'This is a much-needed contribution to the international discussion of how to responsibly use linked data in health research. By covering theory and practice, ethics and law, Adams, Allen, and Flack offer more than just a well-researched academic volume: it is a playbook for researchers and regulators to optimize health data linkage to advance the public good.' Eric M. Meslin, Ph.D., FRSC, FCAHS President and CEO, Council of Canadian Academies
'I strongly recommend this excellent, comprehensive book. It's based on sound theoretical foundations and practical solutions with international relevance. It's a highly important, unique contribution to the literature and is relevant to professionals and students alike across the globe.' Kerina Jones, Professor of Population Data Science, Swansea University, Wales, UK
'This excellent monograph explains how linked personal data can be safely used to answer important health questions. Future decisions about data sharing, requiring legal authorisation as well as independent ethical review, should be timely, transparent and based on clear and consistent criteria.' John D. Mathews, Professorial Fellow, University of Melbourne
'Sharing Linked Data for Health Research is an outstanding academic achievement and worthy of purchase and study by all involved in data-intensive research.' Edward S. Dove, School of Law, University of Edinburgh, UK